Vol. 2 No. 4 (2022)
Horizon Scans

Dementia Concerns and Considerations: A CADTH Panel of People With Lived Experience

Published April 1, 2022

Key Messages

  • As the number of Canadians living with dementia rises, so does the demand for dementia-related care across the country.
  • CADTH convened a 5-member panel of individuals with lived experience of dementia to hear about and learn from their firsthand experiences with dementia-related care, treatment, supports, and services.
  • The panel highlighted the need for care, treatment, supports, and services that prioritize personhood, are inclusive of individuals with young-onset dementia, strike a balance between safety and empowerment, help with navigating the health care system, and involve dignified and respectful communication.
  • Supporting people transitioning into dementia and their loved ones and ensuring that they receive care that meets their unique needs, abilities, personal preferences, and values will require meaningful involvement of individuals during planning, development, and delivery of treatment, supports, and services.
  • These insights from the panel will be available for upcoming CADTH reviews of medical procedures, devices, diagnostics, and drugs related to dementia. They will also be used to identify health technologies and potential topics for future CADTH work about dementia.